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In Feb 2020, I went to New York for work. A month later, I could barely walk to the store across the street. Brain fog got progressively worse. It took me almost a year to start being able to walk minimally again and for the fog to clear. I still remember the day I woke up with mental clarity for the first time in 10 months. 3 years to fully walk long distances again with a rehab program.
It's #LongCovidAwarenessDay. I'm mostly functional now. A lot of people aren't. All the local long COVID specialist programs have had their funding dried up. I'm one of the lucky ones who got help, and got better enough to kinda sorta keep going.
What happens to the people who get long COVID now?
(This is a thread now.
)
@eljojo I assume she muted you, but could you please take your advocacy elsewhere? Canada already has the assisted dying you're raring for, so there's no real grounds to argue with a disabled woman about her experiences with disability and society. Except that like many smart young men, you have a yawning need to be proven correct, whether you are or not.
Here is something to think about. You don't think people are choosing MAID because of economic factors. Yet you are arguing this with a person who nearly chose a quick death at no expense to her over a life of fighting every day to access services and medications.
I'll leave you with that. And because you are not my responsibility, I will also mute you. Please talk to your disabled friends. And remember that talking also includes listening to the other person. Cheers and adios!
@spiegelmama it’s not about being proven correct, she straight up spreading misinformation.
experts work hard on debunking why maid is not eugenics, her own link makes that argument.
i acknowledged her personal experience, not trying to invalidate what she went through, just calling out that throwing shade at MAiD will result in less funding for it.
which will in turn will harm many humans who do legitimately want it, many of them disabled.
There's a difference between political projects (eugenics) and medical procedures (MAID).
The OP illustrated it aptly when they point out that instead of getting pamphlets for mobility assistance they got one for MAID.
Suggesting MAID to the vulnerable who don't need it is *politics*, which is *eugenics*. MAID is just the tool they're using.
Just like asylums for suffragettes, electro-shock for queer people, and sterilization for indigenous and Black women.
@johnzajac @spiegelmama later on she calls the current implementation of MAiD eugenics.
https://beige.party/@mayintoronto/114170636589027331
I really like the angle that you bring though, of political projects vs medical projects.
the reason i chimed in the thread is because i believe it does a disservice to the medical process, by delegitimizing it.
Doctors are political actors. Medical boards are political groups and healthcare standards are political documents.
"Implementation" of medical procedures is the process by which a doctor, medical board, or healthcare standard decides who is an appropriate recipient.
Handing a disabled person struggling with mobility a pamphlet on MAID, rather than one on walkers or wheelchairs, is politics. That its goal is to end life rather than extend ability makes it eugenics.
Trying to suppress or erase the political aspect of healthcare, esp fraught procedures like MAID, isn't how you protect access to them; it's how you empower people to use them to nefarious ends, and ultimately make them go away.
Instead, be clear about what's medicine and what's politics. It will make your argument stronger (and more compassionate to people who deserve your consideration and compassion, like the OP)
@johnzajac @spiegelmama in both articles May shared, the people with disabilities asked for MAiD themselves, they weren’t offered a pamphlet when asking for help for their disabilities.
Mays premise is that the existence of MAiD is the problem.
regarding politics: The same article she shared explains how attacking MAiD does a disfavour to people with disabilities and is used by conservatives to remove funding for it.
From what I read, the premise is that the existence of MAID in a capitalist state whose primary product is immiseration is problematic at best.
I was referring to the articles they posted:
https://beige.party/@mayintoronto/114170555608388124
I'd encourage you to ignore how right wingers hijack the discourse. You can always say to them "shut the fuck up you lying piece of shit". Which, let's be honest, is the only appropriate way to respond to them anyway.
@johnzajac the screenshot I showed is from that same article!
@johnzajac what i’m surprised is that May is fully aligned with right wingers. I see what she’s doing as hijacking the discourse. this thread is my polite way of arguing against what I consider harmful viewpoints.
I'm not sure I'd leap there, but regardless in context it wasn't really the appropriate place to pick that argument, right?
Chronically ill people sharing their moments of desperation after their Bright Line transition is a bit of a vulnerable spot to pounce on them, imho.
I'll bet you could have had a much more productive engagement in a different context.
@johnzajac I tried being very respectful while acknowledging her context, especially early on.
i’m clearly having a hard time reading the room, but I don’t see how it’s a problem to try painting MAiD under a better light. as a public persona, you’re always playing a political role with your toots — if they spread misinformation, it’s important to add the necessary context.
at no point I invalidated her experience.
I agree this wasn’t as productive as I hoped.
@melanie Exactly! There's more than enough money and resources to end poverty in this country.
Maintaining the status quo of poverty is a choice. 1 in 5 Canadians suffering from food insecurity is a choice.
